The capacity to keep getting out of bed each morning is itself a win. But to continue to do so greeting your day to the best of your capabilities, as the best version of yourself possible, continuing to treat others with compassion, and try in your life shows superhuman endurance.
Many people do not try in the face of no resistance and you wake guaranteed to face it and still press onward. This is something to acknowledge and celebrate in yourself regardless what your output is on a given day. You have not only made the decision not to give up on yourself or your life but to continue trying to show up for yourself, your life, and others, as the best version of yourself possible. When many would not blame you to throw up your hands and give up on life, on yourself, or allow your pain to swallow and define you; you choose again and again and again day after day to keep the course. The capacity to live as well as possible when you are chronically unwell shows incredible drive and persistence.
However we manage to emotionally, psychologically, physically, and practically cope with our illness each day: which may cause us to tend to think we are not resilient and tough but weak; the truth is that resilience is inbuilt into chronic illness. Each day in spite of a variety of difficulties you consistently keep moving forward through life. Having to have constant stress and chronic resilience let alone the barrage of symptoms and obstacles created by living with your chronic illness is incredibly difficult and stressful. Even chronic illness warriors are mere humans and so occasionally break down or don't cope as effectively as may have been possible. Humans have an innate physiological stress threshold. And yours is being pressurized every moment of everyday, how could you not have moments of weakness in your experience, give yourself the gift of grace. Realize your life forced you into a place where, overall, resilience is a guaranteed skill you excel at. "We don't know how strong we can be until we have no other choice."
For people with chronic illnesses they are not only limited and restricted in what constitutes their lives: as after an illness one must adapt to an entirely new way of living and mourn what was and could have been settling in to this new more restricted bubble of existence; but they have less of everything I mentioned that we invest into our priorities to invest. A chronically ill individual faces a chronic deficit of energy, attention, time, and money. Being chronically ill taxes the whole system draining energy and attention, even if the illness itself doesn't have diminished attention or energy as a symptom, chronic sickness is exhausting and stressful creating fatigue and inattention as a given. Due to the symptoms of the illness, exacerbation's, flares, medical treatments, regular appointments, inefficiency of adapted styles of approaching activity to mention a few their is a great reduction in available time for the chronically ill. Also everything in life takes money. Medications, doctors, devices, copay's, hospital stays, insurance for instance are a few of the ways that chronic illness cuts into ones finances. That is if the individual is well enough to still be earning an income of some kind. All too often a disease or illness reaches a level of severity where an individual is no longer physically or neurologically capable of holding down employment. So just as every other human must make the critical choice of what is a priority in life and my life specifically so to do the chronically ill. They however face allocating extremely limited resources very thoughtfully, carefully, and intentionally. Living in a chronically debilitating and day to day varying and over time evolving situation of chronic illness forces and trains us to be very intentional and thoughtful of where, how, and who must receive our severely limited resources: in order to continue to have a life worth fighting for and a character we can love and respect; despite that our lives and futures aren't going to be what we had once imagined we thoughtfully and tactfully allocate every available drop each day to what truly matters. Often we still wish to, and feel guilt for, not being able to give more to what and whom we love and hold most dear. In the worst of moments we may even feel like nothing more than a burden to those we most cherish. But the truth is we are far more conscientious and considerate of whom and what gets our energies, attention, time, and money; what gets our priority, dedication, and devotion than most are because we have to be. We squeeze every available last drop from ourselves of these limited resources out of ourselves with great care and thoughtfulness everyday. Being chronically ill forces you to be very aware of what your priorities are and vigilant and attentive to maximizing and managing your available reserves to the right things in life as not to neglect what truly matters. When giving your all is still giving little you learn quickly what truly matters and where to allocate yourself each day, whatever you have to offer on a given day, you are amazingly focused and clear about where it will go. Lastly to have something that is so often taken for granted as the capacity to merely wake and move and live without constant chronic awareness and vigilance and impedance of your body; when you lose your health; you automatically after adjusting get a very stark reminder of what is and is not truly valuable in this life. The chronically ill are masters of the awareness of and daily dedication to their priorities.
So you find your whole world constricted shrunken indefinitely, and have to change and adjust the life you want to live, into that which you are capable to living. There's not an area of your life it doesn't impact nor a day that goes by where your life is not impacted with enduring pain, exhaustion, malaise, or a litany of other symptoms depending on the diagnosis you have. Everything changes and everyday you suffer and everyday you are reminded through symptoms, situations, or difficulties that you are ill and that you suffer and that you will suffer for a long time potentially all time. Losing something so profoundly impactful and integral to life as your health causes you profound compassion for anyone else suffering from any physical challenges of any kind regardless if they are the same or different than your own. Before I got sick I thought I had sympathy at a minimum for those with health challenges. I can say now that I truly had not enough comprehension of what life like this is like to even begin to have sympathy let alone empathy. And when empathy, even sympathy, expands in one area it tends to bleed over into other areas of our thoughts, feelings, beliefs, and actions in life about life on whole and towards others. Often times having a chronic illness can leave you feeling isolated and misunderstood, depending upon the illness, it can literally have you end up alone and isolated, not merely feeling as though you are: But once you connect to other individuals suffering chronic illnesses and disabilities you will be moved by the level of their compassion and empathy. I personally would gladly trade my chronic illness for a cure, but so far that is not looking possible. it has been and is a long and difficult road, I am beyond grateful for having a social network of others who can relate. And it is for them, for their situations, strength, brilliance, resilience, compassion, and impression they have left on me: not for myself that I dedicate and write this specific blog; though it is unfair that bad things happen to good people and chronic illnesses happen to be our bad things I wanted them to know that through because of and in-spite of their struggles they have become superhuman and inspirations.
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AuthorBuilding this is building mastery. It is learning a new skill. It is making time for myself to achieve a goal. A plan enacted imperfectly now is better than a plan enacted perfectly never. Life is a dance not a destination. Even in enacting this I am becoming happy. Letting go of self doubt fear of criticism and learning a skill from the bottom up. Go with me grow with me. Lets get happy. :) Archives
January 2022
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